When I ordered our tickets for the Charlotte Checkers Hockey game, it was on a whim. Spring Break was coming up, and I wanted to plan something special for the kids. The ticket representative was helpful and generous. He gave us perfect seats - in a section for wheelchairs, close to the ice and goal. We saw a lot of action, and it kept the kids' attention. Although Ben had been to a hockey game when he was one, it was essentially a first time for all of them. During the second period, a guy came up to me and asked if my boys wanted a tour of the team's locker room during the break. Yes they would! (and me too) I don't know how these opportunities fall into our laps time and time again. Whether it is being at the right place at the right time, luck or my kids' very cute looks, I just don't know. We seem to walk into these great experiences more often than not. The kids don't get the importance of it all. They can't appreciate that these are once in a
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.