One of our Grin Kid companions, Hayden is in a Halloween Costume Contest. The prize is an Ipad 2, that may help Hayden with his communication. Please take a moment to vote for Hayden in his Spiderman costume - he is a few photos down on the list. Vote for Hayden - Wolf-Hirschhorn Halloween Contest And take a moment to read about Wolf-Hirschhorn Syndrome. Thanks.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.