During camp this summer, an older female counselor made a favorable comment about Ben's genitals to his speech therapist. The speech therapist did not know this women and definitely felt uncomfortable with her making that kind of comment to him. When I got wind of it, I knew it was a strange and weird comment to make about a child, especially to someone unknown to you. I knew it was unprofessional and that the she would probably lose her job over the stupid comment. So I made the decision to not say anything until camp was over. I weighed the positive and negative impact of this woman losing her job to Ben's experience at camp - less staff available, lower staff moral, etc. One of my fears for Ben is to have him molested and he not have a way to tell us. I did not think that this woman was abusing Ben, I just think she said something in passing that she may have thought funny to share with someone else. I do think that when working with any children, sexual innuendos, jokes
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.