Over the weekend, I cleaned our art closet and realized we needed to have an art day to deplete our overflowing supplies. On the first day of summer break, we invited neighborhood children to join us in making fun arts and crafts. With several stations throughout the house, children chose what activities they wanted to participate in and did them as often as they wanted. We had everything from necklace making, paper airplane building, puppet designing and clay molding. Although Ben does not love arts and crafts, he definitely loved having children over the house. I helped Ben make a noodle necklace and let him eat it when we were finished. Bracelet made from buttons. When the arts and crafts were finished, Star Wars became the game. Ben got right in with the kids. It was fun to see him interact with everyone. One little girl whom we have known since she was two, really took an interest in Ben, asking appropriate questions and trying to help Ben get what she thought he
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.