The special education classes at Ben's school performed Phil Collins' You'll Be in My Heart . The words held more meaning because the school is closing and students, teachers and assistants are being displaced to many other schools. There were not many dry eyes by the end. And if you do notice Ben in the center with the orange shirt, he is crying because he saw me. His reaction was upsetting and shocking, since crying is only reserved for wanting to watch a Bob the Builder video. I guess I should not complain, it appears my status is now on par with Bob. * Digital effects in place to obscure identities of the children. You’ll Be In My Heart Lyrics by Phil Collins Come stop your crying It will be all right Just take my hand Hold it tight I will protect you From all around you I will be here Don't you cry For one so small, You seem so strong My arms will hold you Keep you safe and warm This bond between us Can't be broken I will be here Don
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.