I write this from bed, feet propped up with plans of a nap in my near future. In fact the nap was so near in the future, I finished this Sunday night. My eSpecially Ben teammate, Ryan, is watching ACC basketball on the sofa, nursing sore muscles and joints. After running through the streets of downtown Charlotte, we are wiped out. A day later, we are still recovering. Clearly, this is a "before the race starts" photo. This is us looking fierce. As we left the house and made our way to the starting point, our energy and enthusiasm was high. We had read about Charlotte history the night before and felt relatively comfortable answering trivia questions. When we got there, we were happy to see 13 teams assembled. Many teams came wearing costumes and Ryan and I regretted not wearing our eSpecially Ben t-shirts with capes. 80's Girls Caped crusaders TR Pixies Guys Just Trying to be Girls Not sure what they were going for... The race st
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.