Artist: Ben, age 6 Made with a painted egg-shaped Styrofoam base, this penguin has felt arms, feet, nose and bow-tie. His googly eyes give him a sophisticated look. Check out more works of art: 5 Minutes for Special Needs
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.