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Gadgets and Gizmos - Part 2: Chewy Tubes

Before I knew about Chewy Tubes, I searched for something for Ben to chew on that was not someone's hand, hair or electrical cord, and could withstand the pressure of his biting. I once purchased plumbing materials at a hardware store thinking I could use it for Ben. Then I found (or my mom told me about) Chewy Tubes. I get a lot of questions about Ben's Chewy Tube. I usually tell people that Ben needs something in his mouth to chew on and this serves as an appropriate way for him to meet that need. READ=Ben might bite your finger off if he did not have the chewy. If you are unfamiliar with these, I think the official Chewy Tube website does the best at describing their purpose and answering questions: Description of Chewy Tubes Here's my own assessment of the Chewy Tubes: Positives They do the job - if Ben is satisfied with his chewy, he will leave his clothing and other items alone. Easy to clean. I wash them in the dishwasher. The solid "P", &qu

Special Exposure Wednesday: Lights, Camera, Friendship

The week before Christmas, we visited a small town close to where we live, that has a long history of decorating for the holidays. The entire town - businesses and homes - participate by hanging lights, putting out Santas, reindeer and playing music. It is a beautiful sight. This year we were lucky to get a group together of teachers and their families who Ben has known since his preschool days. One family brought along Ben's former classmate. This photo shows them enjoying a bright reindeer together. The other photos are from other sites we saw on our walk. Special Exposure Wednesday , a part of 5 Minutes for Special Needs , is a wonderful way for families to share inspirational photos with others. Each week dozens of sites will post their photos - please check them out.

Moving Closer to God

As the children's choir sang on Christmas Eve, Ben got out of his seat and scooted himself closer and closer to the alter. He remained there throughout most of the service, with the pastor and other members of the church moving around him. Ben was quiet, calm and in the moment. It was a wonderful thing to witness.

Magic Marker Monday: Penguins

Ben brought this home from school. It is an Oriental Trading Company arts and craft kit. Need to use a glue gun. Magic Marker Monday is a creation through 5 Minutes for Special Needs , a website full of information, blogs and discussion groups. One way to celebrate life is to see it through art, and this site helps us share our children's creative masterpieces. Please check out the site.

Guest Blogger: Grandma

Grandma and Ben at a sports bar. I don’t have to tell you how wonderful it is to be a grandparent. All of a sudden it is your house they run to instead of run away from. You receive unconditional love; you get a picture every time you show up; great hugs, kisses and all around recognition for just being you. It is kind of like being a kid again. So there you have it, I am one happy grandma. Ben was my first grandchild. I think that once we knew that he was medically healthy, I set my mind to getting him to be all that he can be. I think at first I was a little too gung-ho and did not take into consideration the feelings that my child and her husband were experiencing. I was, you have to do this.. this .. and that. That’s just me. I like to find solutions to situations. I want to know the end result. Plus I am a special educator so I know a lot of what is out there. I think I did manage to offer some good suggestions. Vanessa is very good about taking advice, and I appreciate the

Special Exposure Wednesday: This Santa's not camera shy!

This was a nice surprise to find Santa in our photo. Special Exposure Wednesday , a part of 5 Minutes for Special Needs , is a wonderful way for families to share inspirational photos with others. Each week dozens of sites will post their photos - please check them out.

Possibilities and Disappointment

Last Tuesday, I spoke with two friends who I do not see on a regular basis. One friend shared a dream she had about Ben two months ago. We were all in front of the YMCA walking to our cars, ready to go down a staircase. My friend gave her hand to Ben to help him walk. In the dream, she said, he gave her this funny look, like, "I don't need your help." Ben was walking by himself, a bit hunched over, but walking on his own. I have had many friends and family tell me about this type of a dream, where Ben is walking or talking. It always makes me smile to think that people worry about Ben like we do, keep him in their thoughts and pray for his well-being. The other friend lives on the opposite side of the city, and we have not seen each other in a few years. She left a long message about a child she had heard about that had similar traits as Ben, and they had found something that helped the child. She wanted to send me the article about it. I have to admit, when I got the m