I know my worth as a mother is closely tied to making lunch for school for my children. Ben is on a set schedule - Monday and Thursday he buys lunch in the cafeteria, all other days, he packs a lunch. We have a good system - Ben gets some variety, I get a break two days a week, but get my mothering needs met. My middle son, Logan, started full day school this year. At first he was adamant that he would not buy lunch - the whole process is intimidating and the food is a bit questionable. Since August, I have packed his lunch. And happy to do so. Two weeks ago, Logan came home and announced that he wanted to buy lunch. It was more fun and gave him more play time (still not sure what he meant by that - but in the mind of a four-year old, it made sense). So for the past two weeks, he's bought his lunch. I bit my tongue trying not to persuade him. In my head, I kept repeating that age old saying about, "If you love something, set it free. If it comes back to you, it is yours.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.