Logan enjoying the whole camping experience. I love everything about camping - the campfire, the s'mores, the hiking, looking for frogs and other small animals - except the sleeping part, oh and the bugs. Within 30 minutes of our house, we have a county park that for $36, you can get a site with a 9'x12' tent already assembled with two cots inside. Not having camped before with all the kids, we decided this may be a good trial run for us. If disaster struck, we could make a fast getaway. For good measure, I also invited Kim, a teacher who works with Ben, and her husband for extra help and moral support. All went great until it was time for sleep - between Sean running in circles around the tent until midnight, teenagers playing a very loud game of hide-and-seek, Ben waking up to use the bathroom at 2am and Logan yelling at 4am, "Where am I?" – no one really slept, despite the Benadryl everyone received before bedtime. Next time, yes there will be a next t
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.