Skip to main content

Finally, Swim Team


The cool spaceship is to motivate Ben to walk from one end to another.

We have been waiting a long time for Ben to join a swim team. Now, he can show off his skills at the Special Olympics in a sport that he enjoys. Our local YMCA staff and local Special Olympics worked together to start a team. 

Ben's first practice was this past Sunday. We could tell he was confused by all the swimmers in the pool with him. He could not help staring at the other athletes. After an introduction and a high-five to a 16-year-old swimmer, Ben was pleased. Making new friends will be great for him.

Here's my post in Charlotte Parent:

Comments

  1. I look forward to seeing Ben's participation. I'm sure he will enjoy the experience.

    ReplyDelete
  2. I have randomly stumbled across your blog and what an inspiration! My daughter is 3 and also has hypoplasia of the corpus callosum. We live in Florida and I have wondered how my daughter will be able to participate in swimming activities in the future. She has two older sisters that would live at the pool if they could. So wonderful to see sweet Ben participating in swim team! You have provided me with hope :).

    ReplyDelete
    Replies
    1. JD - I am so glad you found us. Ben would live in the water if we let him. I have other posts about swimming and his physical therapy sessions in the water. He has come a long way with his skills in the water. We have been fortunate to have great facilities and people willing to work with him. Ben does best when his brothers are in the water with him. I am sure in FL you could find the same. Please feel free to contact me directly if you have other questions: vanessainfanzon@gmail.com

      Delete
  3. Way to go Ben! Love watching and playing with you in the water :)

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru