Ben with his school PT, Vanessa. Walking to the start line. Face of an athlete - photograph by brother Sean. Justin & Daniel, two buddies helping Ben for the day. Ben received two gold medals for 25m and 10m assisted walk. As per his usual response, he pulled off the medals faster than you can say, "Gold Medalist."
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.