Five Years 2009 When I started, it was 2009; Ben was six years old, Logan was four and Sean was one. My first post, Love at First Sight , was an "all in" jump. I stayed up well past my bedtime, writing and creating a name for this site. It posted on September 18 at 11:43pm. At that point, I did not have any long-term goals or expectations for the blog. I knew I wanted to write, wanted to share and for as long as I had something to write about, I would keep doing it. That was it. Not much more thought went into it. Good Stuff Five years later, I could not have imagined the outcomes from writing eSpeciallyBen . We have this incredible record of Ben's progress, helping us to see patterns, changes and growth. We made connections across the world with people who care about similar issues. My confidence in my writing increased and I sought out paid writing opportunities. We have become closer with distant relatives who came to know us through eSpeciallyBen . And
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.