A few months ago, I requested prayers for another boy named Ben, and I recommended his mother's blog, Prayers for Ben Sauer. Ben's mom, Mindy, shared the pain and anguish of finding out about their son's inoperable brain tumor and the family's journey as they prepare for the inevitable. Mindy's strength, honesty and willingness to be truthful during an incredibly painful time is astonishing. The outpouring of love from her family, friends and hundreds of strangers is visible in the fund raising benefit, prayers and comments for support. It brings me much sadness to share that Ben passed away yesterday. My thoughts and prayers are with his family.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.