Gale, Ben's physical therapist, started working with him in the pool one year ago. Ben has always liked the water. He has received lessons or therapy for the past six years, with lots of recreational play in between. Ben's progress has been phenomenal over the past year - working with Gale, his physical therapist, combined with all the water work we did in the pool last summer made a difference. Endurance and confidence in the pool increased, and Ben's ability to move his body deliberately in the water is remarkable. Ben goes where he wants in the water, and if he decides he is going to chase a brother, watch out! Gale is jumping at the bit to get Ben in the swimming event for the Special Olympics, but she, I mean , Ben will have to wait. This sport does not start until middle school. I try to tell her it is just more time for Ben to improve his stroke, but she is ready now. Gale's excitement and enthusiasm definitely drives her to push Ben. However, she makes
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.