Long time ago, I heard an old tale that what you do on New Year's Day, you will do all year long. Based on that, Ben has a good year coming: Running with Logan down a timed track. Time with brothers at the park. Caught reaching for donuts by Sean, a blossoming photographer. Chilling watching Spud from Bob the Builder. Happy New Year - hope your day was a good one!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.