The training session went well. About 8-10 people attended including the head speech person from the school district and a representative from the assistive technology department. Ben's teacher, the Exceptional Children facilitator, the school OT, PT and SLP were there, along with the principal and dean. Ben's private OT, Sarah, attended as well. Sarah was extremely helpful to the discussion because she added technical information about positioning and general therapy information. She was able to talk about using the NOVA Chat from a therapist's point of view. It was invaluable having her there. It also prevented anyone from thinking, "This mother is crazy, thinking her son can do all these things." The session began with a general discussion about why it is important to use the device, At the end, the group watched the video, which was a perfect way to end the session (the video also disproved "the mother is crazy" theory. Thank you Ben.) I was
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.