From the backseat of the car, the question "Mom, what's your weakness?" was thrown at me. My first reaction was to figure out from where this question was coming. Then I remembered the Superheroes, Comics and Star Wars books, toys and movies at our house. Each characters' weakness is key to their story. Then I responded with, "I am not great with crisis." Of course, that answer was met with a "What's crisis?" I explained that when unexpected drama that especially included blood, guts and gore entered a situation, I needed assistance. They asked about their Dad's weakness, and I told them that he would have to answer for himself. Rather big of me, I have to say. The boys talked about their own weaknesses and then we discussed how important it was, in life, to understand your own weaknesses - know what you are good at and know what things you may need help with. My brain pondered this topic all day (and still keeps going) - What are
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.