In Mr. Warmuth's high school social studies class, I raised my hand and asked if Mayor Koch was the governor of New York. I don't remember Mr. Warmuth's response, but I will always remember the years of ribbing I received for that one. For awhile, I may have even been known as "the girl who asked..." And I know the question was a contributing factor to a nickname. In my defense, at the time I asked the question, Mayor Koch had been in office throughout my entire childhood and his first name was barely ever used. Even now, I really have to think hard about his first name...Ed. Yes, Ed Koch. Several weeks ago Logan asked me to teach him how to read a clock. I am not a great teacher, but this seemed like a simple task, one I could handle. Heck, I'd been telling time for quite some time now. I was already feeling the pride of knowing I taught my son how to read a clock. I cracked my knuckles and dug into my explanation. I told Logan about the two hands
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.