We are in the process of selecting an augmentative communication device for Ben and a speech language therapist (one of her hats) sent us this video. I know I have been YouTube crazy lately, but this one is worth it. And I applaud the mom for the way she handled the situation, saw the importance of what occurred and shared its powerful message with us.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.