eSpecially Ben

Ben's PT sent this email to me. I forwarded it to our family because they like to see updates on Ben's progress. The simple forward started a chain reaction of positive energy, attitudes and reignited passions. Who knew a few words and clicks on a keyboard would be able to forward kindness and appreciation? Vanessa, Ben had an AWESOME physical therapy session today! I have a   high-school student shadowing me on Tuesday and Thursday afternoons. I think  having her in front of Ben (because I am so often behind him offering cues/facilitation for proper mechanics/strengthening) added additional   motivation to excel!  We did several sets of sit-to/from-stand without my assist during the transition (but assist for balance once in stand) on command 100%  of the time. We did 10 reps of stand to/from squat to retrieve a toy from the  floor with minimal assist to grab toy (most times he either drops it, flings   it, or sticks it in his mouth)! We had several core strengthening act

As told by Ryan to me: I learned a lesson today. Ben fought me as I put on his ankle foot orthotics (AFOs). He kept his toe pointed out, making it impossible for me to get his heel into the brace. We struggled for awhile, and I finally forced his foot in. I continued to put the Velcro in place, but nothing seemed to fit correctly. Then I realized why nothing was working right, I had the brace on the wrong foot. Ben fought me so hard because he knew it wasn't right. Ben has done this to me several times too. When our children don't use words to express themselves, we have to listen using our other senses. Last night, Ben had a hard time falling to sleep because he was stuffy from a cold. About 10pm, Ben crawled into bed with Logan.  Logan came to get me. When I got there, Ben was curled up in a ball, ready to fall asleep. I moved Ben to his bed and put on a video. About an hour later, we found Ben curled up at the end of Logan's bed again. It finally dawned on me that

This week I learned that one of our eSpecially Parents writers, Donna, passed away in November. She had battled breast cancer a few years ago, but it apparently came back quickly. I was last in touch with Donna in mid-September, but after that, the eSpecially Parents Series took a back burner in my life, and I lost touch with her. I met Donna when her son Ben was in preschool with my son Ben. Her son was known as B.O. and ours was B.M. Besides the silly initials and same name, both boys were not mobile. Donna was going through a rough time in her life with her soon-to-be ex-husband, and we were both dissatisfied with the education and services our Bens were receiving at the school. I felt an instant connection to Donna, and we talked when we could. Donna's Ben had a smile that drew you in. I knew that despite his mobility issues, he loved people and craved attention. He was not a child to be written off or shoved in a corner. And Donna knew this - her love for him was obvious.