I took Ben grocery shopping with me to WalMart . I had this brilliant idea to have Ben in his Convaid Stroller and attach bags to the back that I would fill with groceries. Then as the bags filled, I would bring them to customer service where my cart was waiting. By my third trip to customer service, I was tired of the process. It was a long walk pushing a wheelchair, carrying jugs of milk, only to return to the same section to get more heavy items. Just as I was ready to give up the fiasco, a WalMart staff person came over and offered to find another staff person to walk with us and push a cart to hold our groceries. Hallelujah!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.