We've had a bit of a bumpy start, education-wise, but things are good now. Actually my son was just honored at his mainstream school assembly as the 'Star of the Week' for his class, as he knew all his letters and letter sounds. This is something I was not expecting. Of course I know my son is super clever, but 2 weeks into the school year I anticipated tantrums and being called to come and bring him home, not awards! But I feel this is proof that he is in the right place. His needs are being met and he is content. That's all I have been praying for and that's what we've got! Let me take you back. You see, because my son has trouble with new people, places, routines, and the like I carefully planned our cross country house move 18 months before he was to start school. My intention was to settle him in our new house, and a new pre-school with children who would be attending the local (very sweet, just 80 students total) school to prepare him for the smo
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.