Sorry - the video will no longer work! I will keep working on it. At the pool, Ben initiated this activity over and over. It was the first time he has ever done this. He must have done it at least 40 times. He knew what he was doing was good and he kept practicing. All his cousins, grandma and aunt were there to witness this enormous achievement. Other children in the pool gathered around him to watch. It was a very special thing to see.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.