Ben is hugging Trilby from the Raggs TV Show, a PBS show created in Charlotte. Ben and Trilby would have made the Guinness Book of World Records in the Longest Hug category (which has not been attempted yet) had we not broken them up to give a turn to the other kids waiting in line. * Addendum to this post: In March of this year, the record for the Longest Hug was established - 24 hours and 17 minutes. I was thinking about attempting to set the first record with Ben if it had never been tried, but a full day of hugs may even be too much for Ben. Now a Bob the Builder Marathon... Check out more photos : www.5minutesforspecialne eds.com
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.