This weekend I ran my ninth race of the year - Run for Mercy - at Reedy Creek Park. It was a 5K trail race, organized by an international organization, Mercy . They raised over $21,000 for the local chapter. If you are not familiar with this organization, check it out. They do amazing things for girls in crisis world-wide. And they also know how to plan a race. With "door" prizes, kid games, a fun run, kind-of superheroes ( Captain Salvation , Monkey Joe and the Cow from Chick-Fil-A ), food and drinks, the race was a true family event. The race was well-orchestrated with water available on the trails and volunteers directing us at every turn. I have been running these trails with a friend so I was prepared for the terrain. The best part of the race was Ryan and the three boys cheering me on. It was a big boost to know that they were waiting for me at the finish line. The kids took part in the Fun Run. Sean ended up running way ahead. He rounded the bend and the trees
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.