I am always amazed to hear about parents, in the middle of caring for a child with medical or other special needs, who are able to pull together something so wonderful like an amusement park, a signing program or raise money to cure a disease. Rather than wallow in their own issues, they find ways to reach out to others and make a difference in not just their own child's life, but many others as well. They face the challenges of life head on - helping us all gain perspective on our lives and develop confidence in what we do. This is a lovely story about a family: I Love Lucy Project . Please check it out. This is also a link to a "sneak peak" from their book, "A Mother's Book of Secrets."
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.