At Christmas I received a card from one of Ryan's cousins. Inside the card was a 4x6" magnet with the title, "101 Ways to Praise A Child." It lists those 101 ways beginning with "Wow" and ending with "I Love You" with 99 more in the middle. In my mind, I thought, "What a wonderful gift to add to your holiday cards." Praise was a very important part of my growing up - my parents were heavy on the praise and I understand the value and impact of the special words parents can share with their children. Then I read the card. This exact magnet had been on her fridge while her boys were growing up. Now that they were mostly grown, she decided to pass it on to me. Talk about "Wow!" Let me add that this cousin and I have met just a few times at family reunions and funerals. It has only been through Facebook and this blog that we have developed a relationship. The support from her is wonderful. I feel like I have an extra cheerleade
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.