eSpecially Ben

Ryan and I spent two nights away a few weekends ago – without the boys. We had not done that in two years, and even then, I was 7 months pregnant, so technically we were not alone. We were giddy like school girls (to steal a saying from Ryan), so giddy that we got lost on interstate 77 for at least an hour (that’s what we are willing to admit.) We were headed for Ohio and almost made it to SC. In our defense, we were talking and laughing and relishing in the fact that no one was seated behind us in the minivan. One thing that we discussed was how calm and at ease we were with each other, so calm we never paid attention to which direction we needed to go when we left the gas station. We were together for nine years before we ever had children – so we had a lot of time alone, and I know we never stopped to appreciate it. Nor could we have. When I see couples who are about to have a baby, I want to say, “Go out, spend time alone with each other. It will be years before you will have...

We have three boys – Ben (6), Logan (4) and Sean (1 ½). As probably any parents do, we are always amazed at how different they are from each other. But more than that, I have been shocked at the relationships they have formed with one another, but especially with Ben. The dynamics that I would expect between three typical boys are present in our house. Even though Ben is different, his brothers treat him the same. My favorite story is about how Logan at the age of two made sure that Ben was not overlooked. I took Logan and Ben to the doctor. As many doctors do, if you are good, you receive a sticker. After both boys were examined, the doctor returned with one sticker for Logan. Logan asked the doctor where was Ben’s sticker. The doctor responded that Ben would eat his sticker. Logan told the doctor that we would put it on Ben’s back. Realizing he had been outwitted by a two year old, the doctor quickly went out and returned with a sticker for Ben. I have been surprised by the way ...

I grew up having a great birthday party each year – with friends, Carvel ice cream cake and games. It is important to me that our children have that experience as well. Each year, I’ve stressed over how we can make it great for Ben too. This year, I changed my perspective – it needed to be great for Ben – and that meant changing my view of birthday parties. Ben’s favorite place to eat is Fuel Pizza on Central Avenue – it has TVs anywhere you look, excellent pizza and a low-key atmosphere. I planned a 2 hour party with family and friends with pizza and Bob the Builder cupcakes. After one hour, several slices of pizza and two cupcakes, Ben was ready to leave. With the help of Grandma, he made his way to the exit. Party was over. A paradigm shift is necessary. We, as parents, cannot apply the same standards that we use everyday in our own lives or from our childhood to plan, make decisions or even measure success. A whole new scale must be developed when you have a child with special ne...