I get a report about Ben's progress almost 6 times a week from each of the therapists, after every session. Most of it is mundane information about what they did, how well the session went, how hard Ben worked, how hard Ben worked them, what equipment may need to be fixed, etc. But today, although the setting was the same and the speech therapist was giving his report as usual - he seemed to be saying something new. Or perhaps I was hearing it differently. Basically he said, Ben knows his name - he can identify it. There is no need to work on that goal. Well, I knew that from Ben's IEP meeting in January, but it was good to hear from an outside source that this was, in fact, true information. The speech therapist also said that Ben has met the goal to identify articles of clothing (shoes, socks, pants, shirt) from both pictures and actual items. Then he said Ben knows his numbers, 0-9. His next step was to help Ben learn his colors. The therapist said that when Ben pays a...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.