These last weeks have been harried - and with school out and camp in - posting to this blog has been tough to do. However, I did get some posts out last week - one of my favorites being about Ben petting the goat at an ecology center. I wrote about what a great job he did using gentle touch. You can call it Perspective, Irony or just Life - but the day the post came out, I got a call from the camp director letting me know that Ben had bitten another child. The child was fine, Ben was given timeout. The incident was handled well by the camp staff. But, I guess we have some more work to do.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.