Ben on the Boat Ride Ben has been to Tweetsie Railroad at least three times and this year was the first for him to ride by himself. Teary moments for parents and grandpa.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.