Ben sits in his favorite booth at the cafe. During the summer we have the luxury of doing something different for therapy. We meet at local fun places like the coffee shop, library or kids' museums. Meeting somewhere new offers Ben a place to try out different skills with alternative toys and equipment choices. Ben tries to do some cooking in the cafe's kitchen Ben gets the ring off his head, but his attention is on the rock wall. The OT asked Ben if he wants to try it, but so far he is satisfied with watching. Ben crawls on all fours. Logan dons the body part vest and provides comic relief.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.