Ben will be 10 years old this summer. He is getting taller, stronger and more independent. When I see him do something almost quite age appropriate, I am stopped in my tracks. This day was one of them. I never dreamed that Ben would sit at the table and eat his snack and drink without supervision and without swiping the drink and plate off the table. If he looks a little proud in the photos, you are correct. He knew he was doing something so cool.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.