On Easter Sunday, I asked Mr. Terry, the boys' Sunday School teacher and the church's photographer extraordinaire, to take a family portrait. To no fault of his own, these are the results of that session: Finally one without funny faces, hair pulling, kicking or hiding, but not nearly as fun.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.