Ben's favorite place to be. Ever heard of the sea turtles who lay their eggs on the beach and then head back to the sea. Ben's technique reminded us of those beautiful creatures. If we did not stop him, Ben would have kept going and going. When Ben was not in the water, this is what he looked like... We used the Landeez Chair again. The lifeguards and staff at this beach were so helpful in making sure we knew we could use it for Ben and even offered to put one aside for the next day. It made traveling on the sand easy.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.