I usually do not get sick or have any type of ailments, but these last few months have proven otherwise. This summer I developed a cyst in an uncomfortable location and it got infected. Many doctor visits later, shots, needles, medication and Sean (yes, my three year old) holding my hand, I got through it. Now I am wearing a boot on my right foot. I have had pain in the arch for over a month, mostly at night. During the day I was fine, I even ran two 10k races during this period of time. The night pain was increasing along with my pill popping (just ibuprofen), so I finally saw the orthopaedic doctor. Unable to pinpoint what exactly is ailing me, they gave me a big boot to wear for three weeks and anti-inflammatory pills. What a way to end my 40th year!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.