Ben has his own Convaid Stroller now, and at the suggestion of his school physical therapist we added these "big wheels" to the order. These special wheels easily attach to the stroller without having to remove the smaller wheels. Ben's private PT is trying to teach Ben how to use the wheels, but his hands seem to get caught in the spokes. I also think they may be set too far back for his arms, although I have had Logan test it out and they seem to work fine. It is possible that if Ben sat up straight in the chair, he would have a better angle for propelling himself. Ben gets the concept and can move short distances, but his preference is to be pushed. No surprise there! The wheels are great for when we have long walks over rough terrain. They are much easier to push and provide a smoother ride for Ben. And then there's always that great smile...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.