Well, let's see, my life in a nutshell...I always dreamed of having a family with lots and lots of kids. I wanted about 4 since I'm one of four and that number seemed a good number to grow up in. Well, unfortunately life did not turn out that way. After being married for 5 years and trying to conceive for many of them, we found out we couldn't conceive without the help of science. Thousands of dollars later and a few unsuccessful attempts, we got lucky and were pregnant with twins through in vitro fertilization. One boy, one girl. We were over the moon in happiness. Seven months into the pregnancy I had premature labor contractions and found out I lost one of the babies. It was a hard, sad time. I had to be on bed rest for the remainder of the pregnancy. At eight months, my beautiful son, Tye decided he wanted to be born early. He was just a little guy, 5 lbs, 8 oz. but otherwise perfect and healthy. Tye was perfect in every way. We were so happy,
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.