eSpecially Ben

I never gave much of an update about what results came from the Video EEG Ben had in January mostly because I will not have all the information until we meet with the neurologist next week. The doctor's initial note to us said Ben had 52 rhythmic bursts during the 24 hour period that we were at the hospital. I have Googled rhythmic bursts and none of it made a lot of sense to me, so I am fine to wait.  Often reading information on the internet leaves me feeling more scared and confused than more informed. Most disconcerting is that the seizures which I describe as the "falling forward seizures" are back again. I can see Ben's energy level and bladder control decreasing. He's already bumped his eye and head several times this week. These are the same things that happened last fall when he started these seizures. It really sucks - I thought we were in the clear. I am unsure what the doctor will do when we see her. Change medication? Call for another EEG? After

Seen that commercial about the mom trying to get a decent photo of the family? Vote every day, once a day through March 8, 2011.

In 1992, when Nicholas Keenan was nine years old, he wrote a book about his brother, Owen, who is, “physically and intellectually disabled.” By using photos of the two brothers in typical situations, the book has a realism with which children can relate easily. A simple message is clear – this is my brother, this is what his day looks like, this is how I interact with him and I am glad he is a part of our family. This book could be used in a few ways: Home   Read it with your children to get a discussion going about special needs and disabilities – whether you have a child with a disability in your family or not. Starting a dialogue within your family is one way to handle uncomfortable situations and inappropriate language. It gives parents the opportunity to hear how their children feel about interacting with children with differences. Although the book does not address difficult feelings or topics, it alludes to Owen needing a lift to get in and out