Skip to main content

Sinking Ship


Ever been asked the question:  
Who would you save if you could save one person from a sinking ship? 

Then the person gives you two impossible choices - your Mom or Dad, your brother or sister, your spouse or child (well that's not so impossible). Anyway you get the idea.

In my September 30th post, Never A Dull Moment, I talked about how our school district is making proposals for changes in schools throughout our county. Both Ben and Logan's schools could be affected - moving Logan's school program to Ben's school; therefore, displacing Ben's program. Right now, all my energy and efforts are going toward saving Logan's school. My hope is that if it is saved, then the ripple down effect will save Ben's school. But there are no guarantees.

Logan's PTA and our neighborhood is an organized community of parents, neighbors and businesses. The group will lead a coordinated fight with rallies, letters, emails and representation at community forums and public meetings. Ben's school does not have as much parent involvement or neighborhood connections. I worry that even if we save Logan's school, Ben's school will still be caught in the aftermath of changes.

I hope that if I give Logan's school a life raft, Ben's school will get a flotation device. (Just trying to continue with this metaphor I started.)

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....
  Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine:  Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography