Everyone for Ethan

This is from one of my dearest and oldest friends, Michele. She and I went to high school together many moons ago. We have managed to stay in touch over the years seeing each other when we can. Her son, Ethan, is a beautiful little boy with a very rare disease - only 100 people have it in the world. She and her family have had a lot to go through over the past few years.

Recently, her friends got together to plan a fundraiser to help with some of the financial burden. She recently sent me these words and they affected me so much that I asked if I could reprint them and promote the fundraiser:

Actually, we really have nothing to do with the fundraiser...I really have been very private about it but my friend from the gym is a bigwig at a bank so I went to him for advice about our mortgage...We haven't been able to pay it in a year! My friends from the gym all got together and came to me to tell me they were having it for us!! There has been so many kind and generous people in the community from family, friends, coworkers, acquaintances and even strangers!! It really has restored my faith in people and gives me a new found hope in our situation!!

Check out the site on Facebook:

Everyone for Ethan

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Parenting an Adult Child with Disabilities

"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence How I Make Being a Mom and Volunteer Work at this Group Home

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