Being Part of the Trail to World Games

Ben at the 2015 Special Olympics Mecklenburg Spring Games

Ben is just ONE athlete who participates in the Special Olympics. There are many children and adults with intellectual disabilities who benefit from the sports programs, coaching relationships and fellowship that comes along with competing in the Special Olympics.

There are no costs involved for the athletes. They attend practices, local tournaments, state games and world games - with no cost to them. All expenses are paid through donations.

Today at 6:54am, a message on Facebook popped up from John, "hi vanessa". John is one of the adult athletes I met through the Special Olympics steering committee. After hellos and how are yous, John told me that he was going to the state games today for track and field. He competes in the softball throw and the 25 and 50 meter races. He proudly shared with me that he has been involved with track since 1972. After he assured me that he would stay hydrated at today's games, we said our goodbyes.

I can only hope that in 40 years, Ben will still be surrounded by this supportive and loving community of coaches, volunteers and athletes. Help keep Special Olympics strong. Donate to the Special Olympics Unified Relay Across America: Ben's Special Olympics Page.

** Ben is carrying the Flame of Hope on June 4, 2015. He will be riding his tricycle for a 1/2 mile segment of the route to LA for the World Games. He needs everyone's support to raise money for the Special Olympics. Find out more information here: Unified Relay Across America

Comments

How I Make Being a Mom and Volunteer Work at this Group Home

In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff. Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...

Gadgets & Gizmos - Part 6: Landeez Chair

We spent last week at the beach near Atlantic Beach in North Carolina. At Fort Macon Park , they have a special chair for people like Ben who may need extra help moving in the sand and water. The chair is made by Landeez . We were amazed by this chair. It did travel over the sand and in small amounts of water with ease. We bought an inexpensive strap to go around Ben's waist so he would not fall out. I thought that Ben could go farther in the water sitting in the chair, but it does eventually float...away if in too deep of water. Ben got tired of sitting in it and wiggled his way under the strap. For the most part, it is a great invention and it made it easier for us to keep Ben safe on the beach. If he had been interested in a long walk on the beach, this would have worked great for him.

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom. A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client. Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months. We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....

eSpecially Ben

Search This Blog