First Day of School

Ben and Logan had their first day of school today. Sean starts on Thursday for staggered entry for Pre-K students. Ben's bus was too late for us to wait for it, so after 50 minutes of waiting impatiently, I drove him to school. It was so easy, it made me think about making that one mile drive each day.

This year, I am trying out a new plan. I will pick Ben up from school at 3:15pm every day to give him time to eat and use the bathroom before therapy. In years past, it has been a mad rush to get everything done and if the bus was late, it was stressful. Logan and Sean need to be picked up at the same time Ben is "supposed" to get off the bus. By doing it this way, Ben will get to walk with me to Logan and Sean's school to pick them up. I think he will enjoy being a part of this ritual.

Hope all goes well for your first days of school!

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Parenting an Adult Child with Disabilities

"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom. A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client. Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months. We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....

Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine: Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography

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