These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.

I'm jealous. We can't do that here yet cause the sun is playing hide and seek. Love his expression, :)
ReplyDeleteHow much fun is he having??? I'm jealous - it is the beginning of winter down here and I am already impatient for summer to return.
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