In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff. Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
so cool! I bet everyone was so proud of him!
ReplyDeleteHoly Cow! I am in tears watching that!
ReplyDeleteEveryone is really proud of him - even strangers at the pool understand that he is doing something special. And he does not want our hands on him any more - he pushes us away.
ReplyDeleteWow! That is awesome! Ben is walking and getting around in that pool so spectacularly! My son, who has ACC, has also been doing aquatic therapy for awhile, and I have been astounded and so surprised by the many positive results.
ReplyDelete*cheers for independent Ben, who looks like he is having a terrific time playing in the pool*