Ben is living the teenage dream in his own room with puppy and sports car posters. He also has a touch screen computer with wifi now. Ben uses Amazon Prime to watch all his favorite movies. One day I found Ben sitting at his desk trying to get another movie started. When I went over there to help him, this is what I saw on the screen: I assume he hit the wrong buttons, but perhaps he was shopping Mother's Day early. It sure would have been a strange conversation between Ryan and me when that faux fur shawl arrived at our house. I better make sure that One Click is not working on Ben's computer.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.