Happy New Year! We had a quiet and relaxing holiday break. Chinese food for Christmas dinner, several pajama days and a few visits to local parks made for much needed family time. Alas, reality has set in - school is back in session, cold weather has hit and we are back into the swing of our regularly scheduled program. Ben wears ankle foot orthotics (AFO's) to help him walk. They give his lower leg and ankle support and help keep his foot in the proper place. His feet tend to pronate - turn in so he is walking on his arch. Without these orthotics, he would not be able to walk as much as he does in his walker at school and with assistance at home. AFOs also have their downfall - they are big, bulky, difficult to get on and very expensive (about $1000-2000 a pair). It is recommended to recast every six months for new orthotics, especially if your child's foot is growing. Although Ben's shoes are rough looking after six months, the AFO's themselves are in fairly g
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.