It was March 2013 when I started the process to build a bathroom for Ben. After much heartache and tears, a few wonderful people stepped in to help me with the process. Through their contacts and persistence, they found sponsors. Although I do not have many details, I do know that a few key Charlotte organizations are coming together to build Ben an accessible bathroom. There will be a fundraising event in the fall. As soon as I know more information, I will share. Deep breath. Relax. Repeat.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.