I was not there to see this and it took me at least a week to get the video to play for me. I worked harder when my mom bragged that she was able to open it on two separate devices. But here it is - pretty darn cute and impressive, but what would you expect me to say? The Background Story We want Ben to hold onto his handlebar when he rides his trike. We thought a textured fabric might help entice him to hold on. Sarah, Ben's occupational therapist and the Mary Poppins of OT, suggested we add plastic because Ben likes the noise and feel of it. We used blue duct tape to attach a few plastic pieces to the handlebar. It seemed to do the trick or he was just playing for the camera. Never know with that boy.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.